Last night, something funny and endearing happened on Big Bang Theory. I’m watching the series through because I have never seen it and I need dumb, low-stakes television. I turned to see if you also thought it was funny, my brain tricking me for a split second into thinking you were seated in your usual seat on the couch, but you were not there. You died. I lost language as I gasped for air between tears, attempting to recover from the impact of Grief Whiplash punching me in the gut. It took 93 days for me to look for you in the same room, a sadistic muscle memory and a refreshing reminder that I was not always devastated by you.
Tag: bigttrauma
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Message Sent to Both Heather and Randy Separately on Wednesday:
When Jeffrey and I first started dating, we got into a debate about the word ‘irregardless’. Jeffrey insisted it was not a word, that its meaning is duplicative of ‘regardless’ and that it’s grammatically incorrect to say ‘irregardless’. I googled it and found ‘irregardless’ in the Oxford English dictionary, among others. It does look like the word was added to the dictionary more recently because people say it so much. It’s considered a word even though irregardless and regardless have the same meaning. I loved that conversation so much. It was debate and learning and everything I love so much about what would become our relationship.
My therapist said ‘irregardless’ during our session yesterday and I immediately thought of that memory. I couldn’t tell them because you look like an asshole if you point out something like a grammar error to another person Jeffrey worried he looked like an asshole when he pointed it out to me. But he didn’t. I like learning and I want to do things correctly. I asked Jeffrey what words meant all the time because I knew he would know and I could validate “that word means what I think it means”.
I really feel like I’m never going to have that ever again. And it is suffocating.
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Grief Makes New Sounds
Yesterday during therapy I sobbed so intensely I heard a sound I never heard come out of my body. It was somewhere between the pitch a hiccup and hyperventilating. I do not know how to describe it.
Mom said I need to talk in therapy about what is going to happen next week, about walking into the home we shared, the home where I found you not breathing on our dining room floor. “It’s too soon in the grief process for you to have to be doing this”. As if I did not know. I knew my mom was right because the thought I had the two times she brought it up was, “why are you focusing on this? I don’t have a choice but to go there and pack up our things and pointing out what’s hard about it isn’t going to get all this stuff done.” Defensiveness is always holding up a mirror.
I am overwhelmed. There really is so much to do. I need to sort through your shirts and select the ones I want to keep so someone can help me make a quilt. I need to donate your wheel chair and other medical supplies to the organization who helped you get a wheel chair at no cost after your injury. I need to donate your Trike to the organization that helps folks with disabilities get outside, that helped you test ride different bikes to figure out which one was best for your accessibility needs. I could sell the Trike, it’s worth a lot of money, but that feels wrong when a grant helped you buy it. I need to give your dad space and time to identify what he wants from your things. I need to figure out what I can sell or give away as quickly as possible so I do not have to pack more than necessary. I need to coordinate for a junk person to take the things we cannot haul or donate ourselves. I need to clean and remove my existence from the home I lived in for 8 years, 1 spouse’s gender transition, 1 divorce, 1 pandemic, 1 graduate school degree, 1 engagement, 1 career ending and another starting, and 1 fiancé death. I need to decide what of your things I am not sure I will regret giving away. I plan to box them and write your name on the boxes with a Sharpie. Do I store those boxes in the new apartment or a storage unit? Do I want reminders of this confronting me daily or do I need to put them somewhere?
These questions feel impossible to answer. My mom is right, it is too soon. But I am not getting a choice in making decisions about my timeline for grief. I have to do all of this next week. I did not ask to or sign up for it, but this is happening. When I let in what I feel about being in our home, new noises reverberate through and out of my body. You died when I was not ready and now I have to participate in the next chapter of the trauma triggered by the worst day of my life, the day you died. I am not ready. It is too soon.
I cannot decide if I want to sleep in the apartment or even be in there alone. My parents got a hotel room because eventually there will not be a bed in the place I am trying to remove my existence from. I cannot decide if I will regret not giving myself the time to be in our home, my home, the home the holds so much of my life, of who I am. The apartment holds every painful moment of my life and there are so many of them. It holds my survival and my accomplishments. How do I decide if I can handle being in there? How do I look at your jackets, fold them, and give them away? Will I miss the dumb dice you bought too many of? The coffee mug with yours and your uncle’s name on it? The duvets and bedding we picked out together. You used to sit in the green chair in the office and read a book while I worked. But I do not need the chair. The blankets hold your smell. They hold us. All of these things hold us. Hold a lifetime no longer happening. A dream that is a nightmare I cannot and will not ever wake up from.
I told Heather I keep waiting for my life to get bigger than this grief, but that is not happening. The grief is everywhere I go. It is reflected on the face of everyone who sees me. Everything I do, I’m doing while Grief is sitting on my chest, punching me in the throat, mocking me.
We leave on Friday morning. An 11 hour drive to the guillotine. I feel like I am preparing to stare down the sun. I know I will lose eyesight, but there is nothing I can do to stop it. I need to get used to looking at this duller version of the world, but its sepia tones are so muted and dystopian.
What the fuck?
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A Real Pain
Last night I had my first night alone since you died. I walked all three dogs and did not trip on or lose any of them. I readied their dinner. I reheated leftovers for myself and watched the latest episode Traitors. I ate a small white chocolate cheesecake from Savor Ice Cream. I can confirm it is dangerous those tiny cakes are walking distance from my new apartment. I will be back.
I watched A Real Pain and felt like I was watching a movie about you. To be clear, it was not a movie about you at all. You are not Jewish, nor have Jewish family history in Poland. You also do not have a male cousin you would travel with in order to participate in a Polish Holocaust Tour because a grandmother left you money to visit her family home. But Kieran Culkin’s character felt like you, loving and suffering and entertaining and loathing. Caring for everyone and no one. Looking for meaning and finding a loss for words. Feeling everything and feeling numb to feeling at all. Having feelings so big, people turned away in discomfort. The film was brilliant in its complexity and artistry, in the acting and the writing. I wish you could see it to dissect it with me although I know it would be hard for you to watch. It was, true to its title, a real pain.
Once again, I am struck by how close you feel and how far away you are. You are nowhere and everywhere. I did a Sound Bath on Friday and the image of you laying on the floor next to me resonated through my body. I imagined your breath on my neck, you were so close. Tears poured onto the weighted eye mask I borrowed from the studio. To prevent panic, my brain switched gears into wondering what instruments and tools created the sounds. How does thunder emanate from a bowl and rain fall from a stick? One moment we were surrounded by the lapping of waves on the shore which transitioned into the twinkling whimsy of chimes. What makes all of that happen? I miss our endless conversation about whatever we were curious about.
I wish you could taste the cheesecake. It was airy and not too sweet. You always talked about a cheesecake you used to make and promised to make it for me one day. I wonder how this one compared. I guess that is another thing I can file into my mysteries folder. That and the circumstances that allowed someone to discover how to trap the sound of thunder in a bowl.
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The Grief Palace
I am really scared of how much this loss is fucking me up and that I’m not going to be the same person anymore. I have no way of knowing just how much this is changing who I am. This is Big “T” trauma, and I cannot believe I’m in it.
In response to feeling disconnected from any reality, I have started imagining a building where all of my grief lives. Right now, its shape is unknown, but I can feel the immense shadow of a structure built with the oldest and grayest stone. I can smell the damp air, and it is the kind of cold only January can bring. Fog shrouds the Grief Palace, making understanding its scale and shape impossible, although I keep trying to see it.
Despite the lack of detail on what the building looks like, there is a stately wooden door that is heavy and hot. When I touch the door, the energy of the grief pours into my body like a fire. My chest tightens and I stop breathing. Tears pour out of my eyes attempting to tamper the blaze, but the fire rages through my torso, spreading into my limbs. Eventually I remember to breathe and begin gently and rhythmically tapping my chest to activate my parasympathetic nervous system just as I have taught clients to do.
To get through Christmas, I added a moat around the Grief Palace. Before leaving my bedroom yesterday morning, I imagined raising the drawbridge so I could not walk across to touch the palace. While still visible in the distance, Grief was not something to feel until I had time to attend to the panic it causes.
The moat proved structurally sound as planned. At home last night while watching Elf I allowed myself to approach the Grief Palace. I inventoried the thoughts I had throughout the day of Jeffrey. I wanted to show Jeffrey my gifts, to ask him a question about religion, validate he heard so-and-so say what I just heard, and listen to him explain all the facts about the hummingbirds at the feeder. Tears poured out. As I cried, I saw an image of the moat flooding the land, keeping me from the safety of stable ground. Then I realized I stopped breathing and once again began tapping my chest.
In the panic, several thoughts happen: The grief is too much. Even my attempts to visualize containment are futile. I can’t hold it all. This is never going to get better. How am I going to survive this? Then I remembered this is Bjg “T” trauma and I am not supposed to hold it all. Big “T” trauma is an event that challenges the concept of Self because the emotional pain is SO much, the brain short circuits. Our amygdala (the fear center) becomes hypersensitive to signals of danger. To compensate for the misfire, the brain activates your nervous system and takes offline any systems it does not need to keep you alive/safe. These offline systems include the hippocampus (memory sequencing) and prefrontal cortex (emotional processing). We do not need these functions to run from a wild animal. Our brain in split seconds can decide what we are experiencing is too traumatic to keep all systems going. In short, during a big “T” trauma our brain splits reality to help us survive. After the trauma, we have to make meaning of what happened as our brains continue to misfire in its attempts to sequence the event and integrate the story with the emotions. This process sometimes forms post-traumatic stress disorder.
In my case, losing Jeffrey was so traumatic, my brain has not integrated the emotions with the memory. I cannot see the Grief Palace and when I try to, my body becomes so overwhelmed I have a panic attack.
Nothing and everything makes sense about this loss. I feel grateful to understand what is happening to me and so confused by everything I do not know about it. I want to see the Grief Palace, but the fog is too thick. I climb all that way for no view. A dissatisfying hike where you have to tell yourself “at least the snacks were good and I got some exercise”. What a crock of bullshit.
