One year ago, I arrived at the hospital for rounds anticipating guidance on removing your life support. The medical team informed us the day before tests confirmed you were not responsive. Your brain did not register any of the pain you definitely should have been in. I already knew. I knew when the neurosurgeon named Natalia told me on November 9th to keep hope up, to talk to you and play music. She told me we never know what kind of healing the brain can do and while I knew she was right, I knew you were not coming back. You did not have it in you to heal from this. We did not know how long you did not have oxygen when I started CPR. She introduced herself as Natalia when I arrived at your room. I remember because I tried to address her by title, as Doctor, but she corrected me. “I’m Natalia”. She’s the only name I remember from that week because her name was close to mine. She asked if she could hug me before leaving. I said yes and she gave me a strong, sturdy, caring hug. I played Reggae Saturday on KEXP because you loved Reggae Saturday. That’s what we would have listened to. I held your hand. I told you I loved you and that it was okay to move forward. I am realizing now you were the first of two people I have told this year it was okay to move beyond this life to whatever is next. The second was Grammy.
After Natalia hugged me and left, I sat in the room listening to Reggae Saturday with you alone for a couple hours before others arrived. I do not remember who came or when. I know your sister was there and your brother. Your dad and his partner. My parents were making separate journeys from Chico. I had not slept while staying at Adam and Randy’s. I lay awake and cried, in shock. I got to your hospital room by 6:30am. Dottie was staying with Adam and Randy because I could not leave her alone. I sat on the sofa in your room and focused on breathing. Inhale, 1-2-3-4. Hold, 1-2-3-4. Exhale, 1-2-3-4. Even today when I have box breath like that to help my body settle, I remember sitting in that room on the pleather sofa that was easy to clean. I remember looking at lifeless you and out the window at the oranges and yellows of fall. I remember the beeping as they tried to thin your blood. The machine did not work and the nurse was so kind as she overly explained that “this happens sometimes”.
I was hugged by your neurosurgeon on November 9th. On November 10th, we learned your brain was unresponsive. That you felt no pain. My mom and I walked to your room and a doctor asked to speak with me in a quiet room down the hall. I knew she was going to tell me you were not responsive and actively thought “remember this hallway Natalie, it’s going to change you.” I remember the wall of professional photos of the medical team. I wondered who the interior designer was of a hospital and how did they get that job. As the doctor told me, a conversation I cannot remember, a woman walked in on her phone seemingly unaware I was learning you died. That woman was probably stuck in her own nightmare. Not getting the hint from the palpable despair in the space, the doctor who told me you were brain dead asked her to leave. The woman startled, apologizing for intruding. My mom held me as I wept. We went home. There was nothing left to do. I told Facebook you were not going to wake up and the first of many panic attacks gripped me. Sitting on our sofa in our home, I lost my breath and hyperventilated as I attempted to touch the reality of you dying. The same reality I still struggle to touch. The energy of trauma is other-worldly and powerful. No wonder it splits us.
On November 11th, I arrived at the hospital a little late for morning rounds. My parents were with me, and I think I asked them to stay in the family waiting area until I knew what was happening, although I cannot remember. I did not want to crowd your room and we were only allowed so many people. The medical team stood lining the hallway and I parted the members of your family blocking the entrance to your room so I could set down my water bottle and jacket. Was it raining outside? Or was it sunny? I think it was gray? So many details I cannot remember. I squeezed your hand and told you hello. Your eyes were half open, the sparkle no longer adorning the cerulean anymore. There was a thin layer of white crust under your eye lashes as your eyes attempted to keep moisture in them. I grabbed a tissue and wiped it away. I tucked your hair behind your ears. I joined your family in the doorway to your room and tried to understand what the medical team was talking about. They gave updates about your nutrition and fluid intake.
I think it was on the 11th, although I cannot remember exactly what happened and when, that your sister said the quiet part out loud on behalf of all of us: why are we gathering to discuss your nutrition and fluid levels when your brain died? I did not understand what we were doing at Morning Rounds and was so grateful when your sister interrupted their updates to ask. We arrived on the 11th expecting to be talked through pulling you off life-support, but here we were getting updates on your nutrition. Your sister knew you would not want to be laying there like this. We all knew you were not supposed to be suffering any more than you already had. It was not what you or any of us wanted. I did not hear the reasons and went back to your bedside. Someone told me we were supposed to meet with a team at 10am. Everyone dispersed for a walk, a cry, tea, or coffee. I do not remember where I went.
On the 11th, at 10am, your father, his partner, your brother, your sister, myself, my mother, and my father all sat in the room where I learned you died just the day before. Across from us, two women introduced themselves before quietly and kindly discussing next steps. They asked us to talk about who you were to us. I do not remember much of the conversation. Eventually, they explained organ donation and how it works and I realized they were preparing us for a conversation I had not anticipated. You were an organ donor, and your body had not completely died yet. Just your brain. And, amidst all of this, we could help you help other people. Several of us indicated approval of the idea. It was unquestionably what you wanted. The donor coordinator asked your dad one final time if she had permission to move forward. He made eye contact with me and I nodded (or did I say something?) and he looked to the coordinator and confidently said “it feels like a no brainer. Let’s move forward”. Here we all were in a situation where you were brain dead, having opted to be an organ donor. It was a literal no-brainer. The air in the room hung heavy as everyone quickly assessed if we should start crying over this remark or start laughing. I started laughing, tears filling my eyes. You would have thought it was funny. We looked at the time, and it was 11:11am. So, on the 11th day of the 11th month at 11:11am a group of us defined a day meant for Veterans and Hope as something else entirely. We formalized your time of death.
Today, I woke up at 5am and could not fall back to sleep. I cried as I remembered where I was one year ago and what it felt like to not know what would happen to you. I tried to exercise but quit one-third of the way through because I could not stop crying while on the bike. I canceled the massage I scheduled because I poorly planned it to take place at 10:45am and I knew I could not stop crying or relax as 11:11am passed on the clock today. I am sitting in my dry, but sweat drenched clothes, wearing the KEXP “You are not alone” shirt your dad got you and your Eddie Bower printed fleece pullover we bought that one time at U-Village. I carved into a candle my mom gave me yesterday. The candle was made by a shaman to burn on 11/11, the angel number, the number of hope and remembrance. My mom had been saving it for herself for years, always out of town on the day or not able to get to it. She handed it to me last night after I made Grammy’s cookies for her memorial on Friday. “I realized you could use it more than me”. I carved the words “love”, “healing”, “wholeness”, “alignment”, “rest”, “peace” and “laughter” on one side. I carved your name on the other. I am going to sit here and watch it burn in between episodes of whatever I end up watching. Because today marks one year since you died and I do not know what else to do but try and remember and focus on what’s to come. David Kessler once said “Anxiety” is the Present and the Future while “Grief” is the Present and the Past. I’m firmly in Grief today. It is a relief to be here.









