A Natalie Observed

Tag: Intimacy

  • 11:11

    11:11

    One year ago, I arrived at the hospital for rounds anticipating guidance on removing your life support. The medical team informed us the day before tests confirmed you were not responsive. Your brain did not register any of the pain you definitely should have been in. I already knew. I knew when the neurosurgeon named Natalia told me on November 9th to keep hope up, to talk to you and play music. She told me we never know what kind of healing the brain can do and while I knew she was right, I knew you were not coming back. You did not have it in you to heal from this. We did not know how long you did not have oxygen when I started CPR. She introduced herself as Natalia when I arrived at your room. I remember because I tried to address her by title, as Doctor, but she corrected me. “I’m Natalia”. She’s the only name I remember from that week because her name was close to mine. She asked if she could hug me before leaving. I said yes and she gave me a strong, sturdy, caring hug. I played Reggae Saturday on KEXP because you loved Reggae Saturday. That’s what we would have listened to. I held your hand. I told you I loved you and that it was okay to move forward. I am realizing now you were the first of two people I have told this year it was okay to move beyond this life to whatever is next. The second was Grammy.

    After Natalia hugged me and left, I sat in the room listening to Reggae Saturday with you alone for a couple hours before others arrived. I do not remember who came or when. I know your sister was there and your brother. Your dad and his partner. My parents were making separate journeys from Chico. I had not slept while staying at Adam and Randy’s. I lay awake and cried, in shock. I got to your hospital room by 6:30am. Dottie was staying with Adam and Randy because I could not leave her alone. I sat on the sofa in your room and focused on breathing. Inhale, 1-2-3-4. Hold, 1-2-3-4. Exhale, 1-2-3-4. Even today when I have box breath like that to help my body settle, I remember sitting in that room on the pleather sofa that was easy to clean. I remember looking at lifeless you and out the window at the oranges and yellows of fall. I remember the beeping as they tried to thin your blood. The machine did not work and the nurse was so kind as she overly explained that “this happens sometimes”.

    I was hugged by your neurosurgeon on November 9th. On November 10th, we learned your brain was unresponsive. That you felt no pain. My mom and I walked to your room and a doctor asked to speak with me in a quiet room down the hall. I knew she was going to tell me you were not responsive and actively thought “remember this hallway Natalie, it’s going to change you.” I remember the wall of professional photos of the medical team. I wondered who the interior designer was of a hospital and how did they get that job. As the doctor told me, a conversation I cannot remember, a woman walked in on her phone seemingly unaware I was learning you died. That woman was probably stuck in her own nightmare. Not getting the hint from the palpable despair in the space, the doctor who told me you were brain dead asked her to leave. The woman startled, apologizing for intruding. My mom held me as I wept. We went home. There was nothing left to do. I told Facebook you were not going to wake up and the first of many panic attacks gripped me. Sitting on our sofa in our home, I lost my breath and hyperventilated as I attempted to touch the reality of you dying. The same reality I still struggle to touch. The energy of trauma is other-worldly and powerful. No wonder it splits us.

    On November 11th, I arrived at the hospital a little late for morning rounds. My parents were with me, and I think I asked them to stay in the family waiting area until I knew what was happening, although I cannot remember. I did not want to crowd your room and we were only allowed so many people. The medical team stood lining the hallway and I parted the members of your family blocking the entrance to your room so I could set down my water bottle and jacket. Was it raining outside? Or was it sunny? I think it was gray? So many details I cannot remember. I squeezed your hand and told you hello. Your eyes were half open, the sparkle no longer adorning the cerulean anymore. There was a thin layer of white crust under your eye lashes as your eyes attempted to keep moisture in them. I grabbed a tissue and wiped it away. I tucked your hair behind your ears. I joined your family in the doorway to your room and tried to understand what the medical team was talking about. They gave updates about your nutrition and fluid intake.

    I think it was on the 11th, although I cannot remember exactly what happened and when, that your sister said the quiet part out loud on behalf of all of us: why are we gathering to discuss your nutrition and fluid levels when your brain died? I did not understand what we were doing at Morning Rounds and was so grateful when your sister interrupted their updates to ask. We arrived on the 11th expecting to be talked through pulling you off life-support, but here we were getting updates on your nutrition. Your sister knew you would not want to be laying there like this. We all knew you were not supposed to be suffering any more than you already had. It was not what you or any of us wanted. I did not hear the reasons and went back to your bedside. Someone told me we were supposed to meet with a team at 10am. Everyone dispersed for a walk, a cry, tea, or coffee. I do not remember where I went.

    On the 11th, at 10am, your father, his partner, your brother, your sister, myself, my mother, and my father all sat in the room where I learned you died just the day before. Across from us, two women introduced themselves before quietly and kindly discussing next steps. They asked us to talk about who you were to us. I do not remember much of the conversation. Eventually, they explained organ donation and how it works and I realized they were preparing us for a conversation I had not anticipated. You were an organ donor, and your body had not completely died yet. Just your brain. And, amidst all of this, we could help you help other people. Several of us indicated approval of the idea. It was unquestionably what you wanted. The donor coordinator asked your dad one final time if she had permission to move forward. He made eye contact with me and I nodded (or did I say something?) and he looked to the coordinator and confidently said “it feels like a no brainer. Let’s move forward”. Here we all were in a situation where you were brain dead, having opted to be an organ donor. It was a literal no-brainer. The air in the room hung heavy as everyone quickly assessed if we should start crying over this remark or start laughing. I started laughing, tears filling my eyes. You would have thought it was funny. We looked at the time, and it was 11:11am. So, on the 11th day of the 11th month at 11:11am a group of us defined a day meant for Veterans and Hope as something else entirely. We formalized your time of death.

    Today, I woke up at 5am and could not fall back to sleep. I cried as I remembered where I was one year ago and what it felt like to not know what would happen to you. I tried to exercise but quit one-third of the way through because I could not stop crying while on the bike. I canceled the massage I scheduled because I poorly planned it to take place at 10:45am and I knew I could not stop crying or relax as 11:11am passed on the clock today. I am sitting in my dry, but sweat drenched clothes, wearing the KEXP “You are not alone” shirt your dad got you and your Eddie Bower printed fleece pullover we bought that one time at U-Village. I carved into a candle my mom gave me yesterday. The candle was made by a shaman to burn on 11/11, the angel number, the number of hope and remembrance. My mom had been saving it for herself for years, always out of town on the day or not able to get to it. She handed it to me last night after I made Grammy’s cookies for her memorial on Friday. “I realized you could use it more than me”. I carved the words “love”, “healing”, “wholeness”, “alignment”, “rest”, “peace” and “laughter” on one side. I carved your name on the other. I am going to sit here and watch it burn in between episodes of whatever I end up watching. Because today marks one year since you died and I do not know what else to do but try and remember and focus on what’s to come. David Kessler once said “Anxiety” is the Present and the Future while “Grief” is the Present and the Past. I’m firmly in Grief today. It is a relief to be here.

  • The Wisdom of Ruth Anne Cline

    I took today off because I did not know what I would need. I still do not know. After drinking a cup of coffee, catching up on Marco Polos, and watching an episode of Dawson’s Creek, I felt like I would crawl out of my skin. I thought about running errands, but going to the grocery store is something I would do for Future Me. And today is not for Future Me. Today is for Past and Present Me, for Grief. Instead of filling my gas tank, I walked in Upper Park for almost three hours with Dottie. We walked from the parking lot to the end of Yahi Trail and back up Middle Trail. We were mostly alone aside from a jogger, a cyclist, the man who cleans the portable toilets, and a dog walker with a blind dog. The cloud cover hung low and I could not see the top of the canyon. The creek was silty from the recent rainfall. Leaves were finally succumbing to cooler temperatures and dashes of crimson and gold and chocolate accentuate the oak and sycamore trees. Birds rang the alarm as we entered their territories. A breeze whispered. Dottie smelled everything and kept alert to any sound behind us. I listened to a podcast and kept walking. One foot in front of the other. I’ll know when I’m done and it’s time to turn back. One podcast ended and I turned on another. I could have walked forever except eventually the spiderwebs got thicker than I wanted. We turned around. As we walked out of the canyon, blue skies framed the landscape. There is a metaphor there somewhere, but I do not have the creative bandwidth to know how to better articulate it.

    My grandmother, my mom’s mother, died on Wednesday evening. On Tuesday, my mom called me while I was throwing a tennis ball for Dottie at the dog park that is too small for meaningful acceleration but will do the job. It was 3:29pm. I never heard my mom sound like that before and I knew she was not in her body. She has 24-48 hours. Edita was with her, a close friend. I’m glad she was not alone. I knew I needed to get Dottie home and immediately go visit Grammy. My mom was not in town attempting to visit my sister, my nieces and nephews, and friends before completing a training in Texas. That psychic said my mom would not be in town when Grammy died. I knew I needed to be there with my uncles while my mom and Phil figured out getting her back. I put Dottie in the house and drove to be with them. I hugged them and witnessed them reassure their mother it was okay to go, that Jesus would hold her. That her siblings and mother were waiting. Tears lurked in all of their eyes. The last time I saw one of them cry we were at breakfast after his house burned down in the Camp Fire. Flashback. I hung back when they left so I could have a moment with her alone. I told her I was proud to know her. That mom was coming. That Hailey wanted to thank her for being a safe place when we did not know we needed it. That I wish she could help me understand what I am navigating with losing you. That I love her.

    My mom did make it back on Wednesday morning. She wanted to go directly to the place my grandmother was cared for. I met her and Phil there. I knew it would be difficult for Phil. We were in the week that Phil lived exactly one year ago. He lost his mother, Marie, the lady who loved yellow, on the 25th last year. My parents were going to face losing their mothers the same week one year apart. Eventually Phil left and my mother and I spent Wednesday afternoon with my grandmother. There is poetry there somehow. My mom’s brothers came in and out as time allowed. Eventually needing a break and to wrap up some work things, my mom wanted to go home. We watched a Leanne Morgan sketch on Netflix and I remember watching the same one while in a hotel room driving from Seattle to Chico the week you died. Leanne Morgan is funny and I will not let my sadness and trauma over you taint that. After watching, my mom and I went back one last time. We were tired, but there was not a good reason not to see my grandmother. I kissed her forehead before we left one last time. It’s okay, you got this, I said to her. We knew this was coming. Dementia was there for ten years and cancer most recently. We read the text on Thursday morning. My grandmother passed on Wednesday evening after we left. God keep her. I’m not even religious, but God keep her.

    I do not know how to place these two griefs in the same universe, let alone in my body. As I watched the body of my grandmother labor to keep breathing so we could all say goodbye, I kept thinking about how much this was the way death is supposed to be. This is the loss we prepare for. The loss we expect because of age, because brains cannot function forever, because bodies eventually get cancer. And your death, your loss, is not the way death is supposed to be. People are not supposed to die at 41 because of alcohol used to medicate their mental illness. We were supposed to grow old together, or at least reach five years old. Today, we would have been five years. What am I supposed to do with that?

    I have wanted to ask my grandmother so many questions since you died. How did she recover when Lloyd passed away? Lloyd was a soul connection unlike many of the others. My grandmother and Lloyd were so in love. Hailey and I could feel it as kids. There was this radiant kindness to him that saturated the way we grew up. It matched Grammy’s in a delicate way, still holding the strength and subtle beauty of gossamer. What did that feel like to her? To have him one moment, then not the next? Did they talk about it together? How did he reassure her about life after him? Or did he? I came back from the class trip from Washington DC and I knew immediately by the look on my mom’s face something was wrong. Lloyd passed away while I was touring this country’s ode to patriotism. My mom, sister, and I lived with Lloyd and my Grammy after my parent’s separation and eventual divorce. I watched what happened to Lloyd and felt it, even if I was across the country when he graduated to the next experience. But I was in junior high, too young to know what that could feel like for his partner. For her. And I wonder all the time now.

    A year ago, you guided me through the butterflies at Pacific Science Center. We turned four years old. It was a day that made me feel hopeful, that reminded me of the good parts of us. The parts of us who were curious and wanted to know things. That wanted experiences. That knew we could be so much more than the life we were living. You opened a part of me that let you lead me through the butterflies even though I dislike the idea of their wings brushing my skin. We talked about what we wanted for our wedding, the idea of eloping in Muir Woods for all the obvious reasons. Even with everything going wrong, I trusted you completely. I knew we would navigate it together.

    I knew I would need today off work as I try and grapple with what it means that we could have been five today. We could have been living in this apartment I am in now, together. We could be going to family dinners on Friday, together. To the California coast on weekend trips. Walking Dottie in the park. But you died. In twelve days will be the anniversary of when I found you on our dining room floor. We were four and then we were nothing. It took my family years to get used to the idea of my grammy dying. Will it be the same way with you?

    I have been so terrified of the ways in which losing you will alter who I am. Will I ever trust anyone again? Will I always be afraid they are lying to me about their alcohol use and die? I keep telling myself I would rather be alone than settle for less than I deserve, but did losing you unreasonably raise the bar? I am working so hard to heal. And then my Grammy died. And I do not know how to hold both things at once. I feel like I am in a snow globe trying to decide which flakes to notice. There is glitter everywhere. My attention is fragmented.

    On Saturday, I completed an already scheduled Grief Art Therapy session because I knew I would need time to understand what it means that we will never turn five. I processed what it means to be in two different griefs, to not understand them as both being part of my life and how I am supposed to function. I was so in my head. My mom named on Sunday morning that her feelings need to be processed privately, not in front of others. I instantly understood something I have always felt: there is not always space for our feelings all together, the energy of our feelings together is too overwhelming. No wonder I had not cried while staying with my mother. There was somehow not space. Not on purpose. But how does one process this loss? After Grief Art Therapy, I raced back to my mom’s because her brothers were coming over to reminisce about their mother and help me write the obituary. My mom had signed me up for the obituary which makes sense. I am the writer. I had to write my Grammy’s obituary the same week we would have turned five. What is that?

    It is one of the most distinct privileges of my life to sit at my parent’s dining table with my mom and her four brothers as they remembered who their mother was, how she made them who they all are. I am upset I did not record the conversation for us all to remember. Not one of my grandmother’s children has the same experience of her. There is two decades age difference between them. My grandmother was fifteen years old when she became pregnant with the oldest, and thirty when she birthed my mother. All five of them have individual experiences of anger at my grandmother for abandonment, for the ways she did not always perfect motherhood. And those experiences are incredibly valid. Yet, all of them told stories of her kindness, of her generosity, of her quirkiness. All of them articulated how she impacted them, taught them to not judge others, to hold the complexity of multiple stories, to have Faith. For all the flaws, for all the ways she might have hurt them because we all eventually learn our mothers are humans dealing with the weight of human problems, she modeled always loving them. And they all see and feel that love. There really was nothing my grandmother was prouder of than her children. As I sat documenting and witnessing all of them tell their individual experiences of her, and add more kindling to the story-fire, I felt so aware of how proud she would be of her legacy: these five humans and the love they continue to show everyone else was her gift to all of us and to everyone who knows us. To me. And to you. It is because of my grandmother that I eventually met you. She taught me the generosity, and the love needed to hold the storyteller in us that wanted to grow past four years old. I feel I suddenly understand the answers to all the questions I wanted to ask her. It is her values that allow me to know I will survive losing you. It took losing her to learn that. Because if she could survive all that she did and still have these beautiful children, my family, to show for it, then I can survive losing you. Grammy taught me Love leads everything. And loving you is something I will always be proud of. It’s what she would have wanted.

    When I got back from the park, I made myself breakfast and then committed to being a blob all day. Except to write this, today is for feeling sad about the fact we will never turn five. Tomorrow can be for everything else.

    Grief for Grammy
    Grief for You

  • Is That All There Is?

    Yesterday was 10 months since we decided to donate your organs and officially moved into the space of you being dead. It was also the day I realized I had not thought about it. Around 4:12pm I was walking from one end of my mom and Phil’s home to the other and a voice inside me said “oh wow, you were just now not thinking about him being dead”. It was different than “I forgot he died”. There was no trauma or re-remembering of the moments that filled my life ten months ago. Instead, it was a flutter of noticing, the wings of a memory touching my skin. A whisper that did not knock me over. Whispers knock me over so frequently now, it was nice to notice one that left me with my feet still on the ground.

    I have had few more of these moments the past three weeks. I found a video of you making dinner, lip-synching to Whitney Houston’s rendition of I Will Always Love You. I kind of remember the night, but not really. I know I probably made you do that for me on camera because I found it funny and endearing and wanted to capture it so I would remember. I also probably paused the song so I could film it at the right moment. I remember wanting to remember us and how we felt that day, remember the warmth of being madly and exquisitely enamored with you. I wanted to feel the moment of us being on the same page and in the same room with too many groceries on the counter as you layered whatever is in the leftover containers into a casserole dish. I shared the video on my stories because I love it so much. Because I love you.

    After posting, I got texts and direct messages from more than a few people asking if I was okay. I found the outreach confusing. Did I say or do something to cause worry? I felt and still feel a bit baffled by it. To be clear, I am so grateful people check in. My confusion is in no way a discouragement from doing so. My point is I had another moment recently where a memory of you was not immediately coupled with the dread of feeling the loss of you. The checkins tell me the video feels heavier to others than it did to me. A difficult part of what I am navigating since you died is the fact most people do not understand what I am experiencing in any way. I have grandparents who have not experienced the death of their partner. I am the first person in my family, and in my parents generation to have this happen to them. My aunts and uncles still have their wives and husbands and life partners. I am the first of my friends to have a loss like this. Most of us don’t have our partner die before we are “old enough”. Definitely not when we are 36 and 41. This short fucked up stick is all mine.

    When I focus on the Part of me that misses my Whitney Houston moments with you, I can feel the heat of my throat bearing the responsibility of managing a tidal wave, a useless levee about to let the water destroy my precariously constructed Grief Palace. I do not want to feel restriction when I look at you lip-syncing that you will always love me. Because that moment is the joy of us. I have so few of those to see. There are not enough recordings of us at the moments when things felt good. These moments reassure me I did not make it all up. If there was ever any advice I could dispense, it would be to record the innocuous things with those you love. Get a minute of video here and there and then put your phone away and stay present with them. I did this as much as I could with you, but it will never be enough when I was supposed to have a lifetime.

    I am feeling an integration happen, grief folding into my day to day as I find other ways to fill my time that do not include a screen. I finally have mental capacity to do more than watch tv all day. I read a book and started another. I got my library card so I can save money on buying books I will not read more than once. There are small glimmers of hopefulness floating around me and I feel like I have bandwidth to see them. They are fragile glimmers, iridescent little bubbles floating in the wind and bursting at the softest touch. I told Heather last week I was nervous about experiencing this shift because the last time I looked toward the future, a wave of grief destroyed any sense of stability. I lost myself into a depression I do not like and loathe to welcome back. You death makes me scared to trust Hope. Some days I am pretty sure the destruction of Hope is probably the worst part of your dying. Right now, I make it through every single day attempting to convince myself that Peggy Lee was wrong. This cannot be all there is. So, I catalog the small whispers that do not knock me over. I try to watch the bubbles as they float along the cliff. I need as many of these moments as I can get.

    I am operating in a world that is only one day at a time, and more often a few hours at a time. I am struggling to plan for any more than today and maybe tomorrow unless someone else has made the plan for me. Tell me a date and time, and I will be there. My ability to be creative and follow through is limited which makes me a poor social companion. Relationships are two-way streets and there is roadwork on my side. Sometimes I can get around the construction, but most of the time I am stuck in traffic. I feel like I am constantly tricking myself to get things done, something that has been a thread in my entire life, but not in the way it is now. Before you died I ate without thinking about it. Now I eat because it is time to eat. Meals are big factor in how I pass time. I get to lunch and am thankful I made it to halfway through the day. At dinner, I actively have gratitude I can go to sleep soon and pass more of this horrible After without you by sleeping.

    All of that said, I am proud of me. I cook myself dinner more than I do not. I remain mostly sober. I pay my bills on time. I ask for help when I cannot pay my bills on time. I attend all of my client sessions and am accountable in my job. I attend weekly supervision to make sure I do not lose sight of my grief as it impacts my clients. I attend weekly therapy. In July, I joined an art therapy group with other therapists once a month. I am starting art therapy biweekly to have more space for someone to witness what I am going through. I stay in contact with my small group of people most days and remain responsive. The level at which I am functioning astounds me and, when I think about it, I feel validated in how exhausted I am. Then I remember I am exhausted of being exhausted. Then I tell someone in the rotation about feeling totally frustrated with my life and completely depressed. Then I watch tv or drink wine and puzzle or have an edible. You died ten months ago and my body still has not repaired from all the ways my brain broke when I found you not breathing on our dining room floor. But I make myself dinner more than I do not. And I started to notice that I do not always think about you dying. At least there is that.

    August 26, 2022

  • Grief Palace Expansion Pack

    Six months have passed since I found you on our dining room floor. Six months without you. Six months of waking up at 2am to lay awake for a while, to eventually turn on Friends when I cannot fall asleep, to eventually switch it to How I Met Your Mother when I catch the episode of Friends I have not seen a while. I cannot believe it has only been six months and that it is already six months. It is six months since I found you on our floor, and so much of my life still does not feel real.

    I cannot believe you are not here. Everything I do, every single thing, reminds me that you are missing. I walk Dottie on roads you have never been on. I eat at restaurants you will never try the food at. I have days I cannot come to the living room and vent about. I go on walks through the canyon with my dad and I cannot show you the flowers or how picturesque Dottie looks in contrast to the scenery. I look for accessible entrances and parking spaces you do not need access to. I find books I want you to read. You are everywhere, a suffocating experience I cannot fathom when juxtaposed to what is the reality is: you are nowhere at all. I do not understand how you went from physical space to omnipresent, as ubiquitous as the air touching my skin.

    Last week, I ordered a coffee at Daycamp and your name popped up when my payment approved. Apparently, your name, not mine, is on the loyalty account attached to the particular card I use for treats. Thank you, Jeffrey. The words appeared on the screen. The Grief Goblin grabbed my stomach while punching me in the sternum. I lost my breath. Thank you, Jeffrey. I remember when I took you to DayCamp during your inaugural visit to Chico so we could celebrate your birthday. I wanted you to see where I grew up, to meet my family, and to get a sense of whether relocating here was a possibility for us. We needed a coffee to fuel. I told you that you would like the avocado toast. You did. I told you I could see us moving here. You responded with letting me know all the education programs you had found to potentially enroll in, the doctors that could support your care, and the neighborhood in which you would not mind living. You were excited. I have not been back to Daycamp since your name appeared on the screen. I cannot unsee your name at the place I treat myself to overpriced Chai Lattes made with delicious Chico chai in a perfectly balanced spice-to-oat milk ratio.  Thank you, Jeffrey.

    I talked about feeling you in the last post, that I felt the warmth and adoration of you, but then the feeling disappeared. I have not been the same since. I sense a vortex opening around me and I can feel that I am on the precipice of a new phase of this journey. Since I felt you, I feel a loneliness that was not palpable before, a new wing of the Grief Palace. I feel beholden to it, vigilantly examining the invader of my body. I also feel longing. Longing for joy, for reprieve, for anything to distract me from this. I do not remember the last time I laughed without abandon in the intimate companionship of the friends who really know me. I miss the intimacy of existing without explanation, of being in physical space with someone and not having to talk about anything intelligent while also being able to discuss everything important. Missing you reminds me of how much I miss my friends, of how much I miss my life, of how much I miss not feeling like this. And I never get a break from it.

    I even miss you in my dreams. Never during. Only when I wake up and I realize you were not in them. The elaborate world built by my brain during sleep did not include you in it. Another reminder you are not here. I do not get you in my dream life or my real life. Only in this mental prison while I am awake and aware and present in the suffering of it. I imagine I am a set of Matryoshka dolls attempting to organize themselves but continuously knocked onto the floor. I just want to put them in order again so I can see them all at once, but alas, this next wave is toppling me over. I am no stronger than untethered seaweed on the shore looking for anchor.

    I am going to sleep now. Six months without you and I want to wake up when this is over. Joke is on me. You’re not here tomorrow either.

    Dottie with her toungue out because the world needs more of Dottie: