Tag: mentalhealth

  • Grief Makes New Sounds

    Yesterday during therapy I sobbed so intensely I heard a sound I never heard come out of my body. It was somewhere between the pitch a hiccup and hyperventilating. I do not know how to describe it. 

    Mom said I need to talk in therapy about what is going to happen next week, about walking into the home we shared, the home where I found you not breathing on our dining room floor. “It’s too soon in the grief process for you to have to be doing this”. As if I did not know. I knew my mom was right because the thought I had the two times she brought it up was, “why are you focusing on this? I don’t have a choice but to go there and pack up our things and pointing out what’s hard about it isn’t going to get all this stuff done.” Defensiveness is always holding up a mirror. 

    I am overwhelmed. There really is so much to do. I need to sort through your shirts and select the ones I want to keep so someone can help me make a quilt. I need to donate your wheel chair and other medical supplies to the organization who helped you get a wheel chair at no cost after your injury. I need to donate your Trike to the organization that helps folks with disabilities get outside, that helped you test ride different bikes to figure out which one was best for your accessibility needs. I could sell the Trike, it’s worth a lot of money, but that feels wrong when a grant helped you buy it. I need to give your dad space and time to identify what he wants from your things. I need to figure out what I can sell or give away as quickly as possible so I do not have to pack more than necessary. I need to coordinate for a junk person to take the things we cannot haul or donate ourselves. I need to clean and remove my existence from the home I lived in for 8 years, 1 spouse’s gender transition, 1 divorce, 1 pandemic, 1 graduate school degree, 1 engagement, 1 career ending and another starting, and 1 fiancé death. I need to decide what of your things I am not sure I will regret giving away. I plan to box them and write your name on the boxes with a Sharpie. Do I store those boxes in the new apartment or a storage unit? Do I want reminders of this confronting me daily or do I need to put them somewhere? 

    These questions feel impossible to answer. My mom is right, it is too soon. But I am not getting a choice in making decisions about my timeline for grief. I have to do all of this next week. I did not ask to or sign up for it, but this is happening. When I let in what I feel about being in our home, new noises reverberate through and out of my body. You died when I was not ready and now I have to participate in the next chapter of the trauma triggered by the worst day of my life, the day you died. I am not ready. It is too soon.

    I cannot decide if I want to sleep in the apartment or even be in there alone. My parents got a hotel room because eventually there will not be a bed in the place I am trying to remove my existence from. I cannot decide if I will regret not giving myself the time to be in our home, my home, the home the holds so much of my life, of who I am. The apartment holds every painful moment of my life and there are so many of them. It holds my survival and my accomplishments. How do I decide if I can handle being in there? How do I look at your jackets, fold them, and give them away? Will I miss the dumb dice you bought too many of? The coffee mug with yours and your uncle’s name on it? The duvets and bedding we picked out together. You used to sit in the green chair in the office and read a book while I worked. But I do not need the chair. The blankets hold your smell. They hold us. All of these things hold us. Hold a lifetime no longer happening. A dream that is a nightmare I cannot and will not ever wake up from.

    I told Heather I keep waiting for my life to get bigger than this grief, but that is not happening. The grief is everywhere I go. It is reflected on the face of everyone who sees me. Everything I do, I’m doing while Grief is sitting on my chest, punching me in the throat, mocking me.

    We leave on Friday morning. An 11 hour drive to the guillotine. I feel like I am preparing to stare down the sun. I know I will lose eyesight, but there is nothing I can do to stop it. I need to get used to looking at this duller version of the world, but its sepia tones are so muted and dystopian.

    What the fuck?

  • A Real Pain

    Last night I had my first night alone since you died. I walked all three dogs and did not trip on or lose any of them. I readied their dinner. I reheated leftovers for myself and watched the latest episode Traitors. I ate a small white chocolate cheesecake from Savor Ice Cream. I can confirm it is dangerous those tiny cakes are walking distance from my new apartment. I will be back. 

    I watched A Real Pain and felt like I was watching a movie about you. To be clear, it was not a movie about you at all. You are not Jewish, nor have Jewish family history in Poland. You also do not have a male cousin you would travel with in order to participate in a Polish Holocaust Tour because a grandmother left you money to visit her family home. But Kieran Culkin’s character felt like you, loving and suffering and entertaining and loathing. Caring for everyone and no one. Looking for meaning and finding a loss for words. Feeling everything and feeling numb to feeling at all. Having feelings so big, people turned away in discomfort. The film was brilliant in its complexity and artistry, in the acting and the writing. I wish you could see it to dissect it with me although I know it would be hard for you to watch. It was, true to its title, a real pain.

    Once again, I am struck by how close you feel and how far away you are. You are nowhere and everywhere. I did a Sound Bath on Friday and the image of you laying on the floor next to me resonated through my body. I imagined your breath on my neck, you were so close. Tears poured onto the weighted eye mask I borrowed from the studio. To prevent panic, my brain switched gears into wondering what instruments and tools created the sounds. How does thunder emanate from a bowl and rain fall from a stick? One moment we were surrounded by the lapping of waves on the shore which transitioned into the twinkling whimsy of chimes. What makes all of that happen? I miss our endless conversation about whatever we were curious about.

    I wish you could taste the cheesecake. It was airy and not too sweet. You always talked about a cheesecake you used to make and promised to make it for me one day. I wonder how this one compared. I guess that is another thing I can file into my mysteries folder. That and the circumstances that allowed someone to discover how to trap the sound of thunder in a bowl.

     

     

  • MuirWood

    Jeffrey’s last name is Muir, and mine is Wood. We were MuirWood. I loved and still love that. For his birthday in 2022, I bought Jeffrey a custom blue neon sign that said Muir Wood. It hangs now in our living room on a gallery wall of artwork we both collected. We talked about eloping in Muir Woods as a way to commemorate our pairing in a space that, while we had never been there together, would feel so natural to who we both were. Redwoods, clean air, warm spring. A beginning marked with the hope of a season blossoming and the wisdom of nature. I do not know what I will do with the MuirWood sign at the end of this month when I make it back to my apartment to pack and move. Where does one put a sign that represents all your dreams disappearing? Under a bed? In the back of a closet? The trash? Hanging it feels impossible, a painful reminder of what will never be. Not keeping it feels like a betrayal.

    When Jeffrey entered the hospital, I started a group text with his sister, his brother, and his father. I called it “MuirsWood” because there are three of them and only one of me. It felt poetic and honoring while also being accurate. Today, Jeffrey’s father reminded us it has been two months since we handed Jeffrey over to the organ retrieval team. With the reminder, I wanted to remember what happened in those few days. I do this a lot since I have been back in Chico – I go read every post I made from that week so I can revisit what I experienced. Every time I go back to remember or attempt to document the timeline of what happened in the hours and days after finding Jeffrey, I get stuck as I uncover a new piece to process. Today is no different. As I read the Facebook posts now, I am struck by the time lapse of what was happening before Jeffrey died.

    For context, if you were to look at my Facebook timeline (which is private), you would see the two updates below, one after the other.

    I do not understand how I could go from such a relief for surviving Election week as a therapist, to finding Jeffrey on the floor and everything I am dealing with since. The juxtaposition of those two experiences existing in the same 20 hours, let alone the same universe feels astonishing.

    It also strikes me as I look at these posts that I thought on Saturday, November 9th, I would potentially have weeks with Jeffrey. The news I last had is there is going to be a lot of waiting in the weeks ahead. I know that is because the neurologist team told me on Saturday morning we had to keep waiting to see, that miracles happen, that we do not know enough about what the brain is capable of. I also know I could not believe what my instinct knew was true because it was too inconceivable. His last words flash in my brain again. I love you cutie.

    I have talked about knowing in my body Jeffrey was gone when I found him, and I do still trust I knew that. But I could not listen to my instinct in the aftermath of finding Jeffrey. Experts were the 9-1-1 operators talking me through CPR for the 8 minutes it took the first responders to arrive. Experts were the paramedics who spent 5 minutes alternating between CPR and defibrillation in an attempt to bring back a asystole pulse. Experts were the ER nurses who pumped him full of medicines to stabilize his body. Experts were the ER doctors who cooled his body down to 91 degrees (or was it 89?) to minimize the stress as Jeffrey’s brain tried to stop swelling and connect to his heart. What do my instincts know about what science and medicine can do for our bodies? Absolutely nothing.

    I do not know how it has been two months since we gave Jeffrey to the organ donation team. I just spent two hours trying to explain in this post that I do not understand how on a Thursday night, I was a therapist who survived Election Week and 20 hours later I was a fiancé performing CPR on her partner. 20 hours separate before and after as documented on social media. I will end this post as I suspect I will be ending many posts:

    What the fuck?

  • A Bike Ride

    Somewhere in the twilight where awake meets sleep, I dreamt of planning a bike ride with you. I imagined talking to you about it being 70 degrees on Thursday and how we should take advantage of that and go for a bike ride to the park. We could bring Dottie in the backpack and some snacks from PCC. As quickly as I envisioned the warmth of the sun and the cool feeling of the earth beneath us, I realized you were not here to actually go on the ride. That it will be 70 degrees in Chico, not in Seattle. That I am now in a totally different world than I was. The sense memory of crisp air on my face as we rode bikes down the Burke and the look of serenity in your smile as you pedaled down the path faded. My eyes jolted open, and I immediately pulled Dottie closer. Tears did not fall as I lay contemplating how silly it felt to plan a day with you when you are not here anymore. I checked the time. 12:23am. Great – it was going to be a long night if this was how it started.

    As I reflect on this now, I find it interesting tears did not and are not falling. Why is that? Tears shed from my body with any sort of focus on how much I miss you, a river forcing itself through the damn. But not now with the sense-memory of planning a day with you? I think I feel relief to still know you are there somewhere. That I can feel you even though you left me. Whether planned or not, a detail I can never know, you did leave me. That part, the leaving, feels so clear.

    This is the first time I have felt like writing to you or telling you how I feel about what is happening in my life. I wish you were here, and I am furious that you are not. I am so angry you could not manage your life more effectively, that trauma, neurodivergence, mental illness and a society that closes doors to discomfort prevented you from learning to manage your life. You, the smartest man I will ever know, could not see a pathway out. I am devastated I cannot talk to you about it. That you cannot reassure me yourself you did not drink as much as you did on purpose. I cannot live in the story where you killed yourself because that story is too fucking sad. You promised me you would not leave me in that way, that you would not end your life and, even if you had to break that promise, I just do not think you would have drunk yourself to death on purpose. That feels too messy and sloppy. I do not think you would have let me find you in that position, aspirated on your vomit and not breathing. You would not want to burden me that way. I know if love were enough, you would still be here. I know this is not my fault. Yet, knowing this does not change the shape of my anger and that you are not here. The only person I want reassurance from cannot provide it. Sitting in that reality is what causes tears to fall. They are falling now in hot globs down my face. I need your hug, your hands on my face, your words. Your beautiful words.

    I found you on our dining room floor 61 days ago. My body knew when I found you that the text you sent that morning was the last time you would speak to me. “I love you cutie.” For the past few weeks, my entire body aches all the time. I am storing grief in my hips and the pain leads to restless sleep. I wake up a lot and wish I could reach across the expanse of our bed and grab your hand as I used to. Instead, I hit play on another round of Gilmore Girls or How I Met Your Mother and avoid wondering about when I will sleep again. As if there is any way to know.